Note: Attendees are encouraged to attend “Driving Collaboration and Cross-Sector Data Sharing with a Community Information Exchange” on Tuesday at 4:30PM and read the Report: Catalyzing Whole-Person Care: Consent-to-Share is the Key (https://stewardsofchange.org/wp-content/uploads/sites/2/2024/09/SOCI_report.pdf)

Sharing sensitive personally identifiable information is prerequisite to providing whole person care to those with multiple needs spanning health, social services, housing, education, justice and other sectors.   Effective consent-to-share processes enable individuals to choose what information they want to share with whom, and then support the implementation of high-fidelity information exchange reflecting those personal privacy preferences.  At present, individuals face disconnected systems and repetitive processes of providing both mundane and sensitive, potentially retraumatizing, information to obtain the services they and their loved ones need. 

The Consent Service Utility (CSU) model is a blueprint for designing, building, testing, and operating a collaborative system of sharing personally identified information in line with law, ethics and the personal preferences of people who might benefit from their information being shared.  It articulates the multiple processes and services needed for obtaining consent decisions, managing those decisions, and protecting and sharing the desired information among providers caring for multi-system involved people.

During this pre-conference workshop Stewards of Change Institute will present an overview of our comprehensive CSU model, which has been developed with our partners over the past four years.  We will delve into the design, functional requirements, and architectural roadmap for advancing the model and its components. In addition, we will hear updates from leading States, including California, Washinton, and New York, which have made significant progress towards adopting unified consent management. Lastly, we will facilitate roundtables and host an interactive discussion to identify how the lessons learned from these leading States can be applied to the CSU model.