Name
From Ideas to Action: Implementing the Consent Service Utility - Consent Management Session 2
Session Type
Programmatic Meeting
Room Name
Richard
Date & Time
Thursday, October 17, 2024, 11:30 AM - 1:00 PM
Time
11:30 AM - 1:00 PM
Description
Note: Attendees are encouraged to attend “Driving Collaboration and Cross-Sector Data Sharing with a Community Information Exchange” on Tuesday at 4:30PM and read the Report: Catalyzing Whole-Person Care: Consent-to-Share is the Key (https://stewardsofchange.org/wp-content/uploads/sites/2/2024/09/SOCI_report.pdf)
During our pre-conference workshop on Tuesday, participants learned about the Consent Service Utility (CSU) model – a blueprint for designing, building, testing, and operating a collaborative system of sharing personally identified information in line with law, ethics and the personal preferences of people who might benefit from their information being shared. At that time, Stewards of Change Institute shared our vision and journey over the past decade and how we identified Consent-to-share as the key to advancing whole person care. Thought leaders from early adopters of unified consent management solutions shared best practices and participants began to identify how to put these ideas into practice.
At this follow-up workshop, participants will take the next steps to develop concrete, actionable steps for designing and testing the Consent Catalog – a critical component of the CSU. This will be grounded in an exploration of the work being undertaken by the Chicago Department of Public Health and the Cook County Bureau of Economic Development and led by the Illinois Public Health Institute to develop a Regionwide Community Information Exchange (CIE). Leveraging the output from Tuesday’s pre-conference session, we will dive more deeply into the application and next steps for developing the Consent Catalog, and the broader CSU model with Chicago.
This session will utilize two specific use cases developed for the pilot phase of the Chicago CIE as the basis for the interactive discussion. The use cases are focused on the health of people experiencing homelessness in shelter-based care settings and medical respite care.
During our pre-conference workshop on Tuesday, participants learned about the Consent Service Utility (CSU) model – a blueprint for designing, building, testing, and operating a collaborative system of sharing personally identified information in line with law, ethics and the personal preferences of people who might benefit from their information being shared. At that time, Stewards of Change Institute shared our vision and journey over the past decade and how we identified Consent-to-share as the key to advancing whole person care. Thought leaders from early adopters of unified consent management solutions shared best practices and participants began to identify how to put these ideas into practice.
At this follow-up workshop, participants will take the next steps to develop concrete, actionable steps for designing and testing the Consent Catalog – a critical component of the CSU. This will be grounded in an exploration of the work being undertaken by the Chicago Department of Public Health and the Cook County Bureau of Economic Development and led by the Illinois Public Health Institute to develop a Regionwide Community Information Exchange (CIE). Leveraging the output from Tuesday’s pre-conference session, we will dive more deeply into the application and next steps for developing the Consent Catalog, and the broader CSU model with Chicago.
This session will utilize two specific use cases developed for the pilot phase of the Chicago CIE as the basis for the interactive discussion. The use cases are focused on the health of people experiencing homelessness in shelter-based care settings and medical respite care.
Session Objectives
• This session will provide an opportunity to roll-up your sleeves and work alongside SOCI, IPHI and national subject matter experts to apply the CSU model to the evolving work in Chicago.
• We will develop concrete next steps for implementing a CSU through the lens of the initial use case applications – moving from blueprint to roadmap.
• The workshop will also benefit the Chicago CIE project by giving them access to national thought leaders in consent management.
• We will develop concrete next steps for implementing a CSU through the lens of the initial use case applications – moving from blueprint to roadmap.
• The workshop will also benefit the Chicago CIE project by giving them access to national thought leaders in consent management.
Speaker Name
Daniel Stein
Speaker Organization
Stewards of Change Institute
Speaker 2 Name
Kristine McCoy
Speaker 2 Credentials
M.D., MPH
Speaker 2 Organization
Stewards of Change Institute
Speaker 3 Name
Brian Handspicker
Speaker 3 Organization
Stewards of Change Institute
Speaker 4 Name
Waldo Mikels-Carrasco
Speaker 4 Organization
Illinois Public Health Institute
Speaker 5 Name
Ellen Clewett
Speaker 5 Organization
Illinois Public Health Institute
Speaker 6 Name
Mohammad Jafari
Speaker 6 Title
Subject-Matter Expert
Speaker 6 Organization
Independent