Name
Creating a Health Data Utility in North Carolina: Progress, Possibilities, and Pain Points
Session Type
Lightning Talk
Description

North Carolina is creating a health data utility (HDU) to bridge gaps in data sharing between health care, social services, community organizations, public health, and other state agencies. This presentation will describe findings to date in the transition to an HDU, highlighting key use cases, challenges, and the importance of stakeholder engagement. Attendees will gain insights into legal, technical, and operational considerations for implementing an HDU and how this model can enhance whole-person care.

Date & Time
Monday, September 29, 2025, 3:45 PM - 4:15 PM
Time
3:45 PM - 4:15 PM
Presentation Learning Objectives
1) Understand the concept and rationale for an HDU through framing of the purpose and motivation of the work
2) Describe potential use cases and impact of an HDU in North Carolina through reporting on findings from stakeholder discussions
3) Identify key challenges and considerations in HDU development through reflection on hurdles encountered to date
Speaker Name
Jessie Tenenbaum
Speaker Credentials
PhD
Speaker Title
Associate Professor, Department of Biostatistics & Bioinformatics, Duke; Senior Data Strategist, NC HealthConnex
Speaker Organization
North Carolina Department of Information Technology, Duke University School of Medicine
Location Name
Platinum Breakout 1